Saturday, May 31, 2014

Run, Walk or Roll with Wyatt.


 


Hi guys! 

I know it's been awhile since I've published a new post here on the blog. It's not for a lack of writing or fewer thoughts about various parts of our life. I actually have several pieces completed, though I haven't pushed the "publish" button on any of them yet. I'm not sure why, exactly. I guess I've just needed to "be" without putting it out for all to see at the moment.

But regardless of all that, today I'm here to announce a project that our family has been working on in honor of Wyatt's upcoming birthday in July. It's something that we're all a little excited about. We've been brainstorming as a family to come up with a way to honor, celebrate and remember Wy. Maggie initially liked the idea of hosting a 5k in his honor and we used that to come up with our current event, "Run, Walk or Roll with Wyatt", which will be a virtual charity race.
What is a virtual race? -- Well, a virtual race is much like any other race up until "race day." You will first be required to register through the event listing via active.com. At that time you will choose the distance you want to run, walk or roll 'with' Wyatt -- 1mi, 5k, 10k, half marathon (13.1mi). Registration will be open through June 2014. 


You will be able to complete your chosen distance ANY PLACE and at ANY TIME of your choosing within the month of JULY.
You can begin logging your miles with Wyatt on July 1st! Seeing as there is no destination, specific day or time that the race will be held means that ANYONE from ANYWHERE within the country, or world, can participate.

ANY age, ANY place, ANY ability, ANY pace, ANY day in July -- no limits.

Upon registering we will have special race bibs available and mailed to each individual entered. Custom medals will also be awarded to each participant following the month long race. We hope to have T-shirts available for purchase, as well, but will have more info about that at a later date.


The only requirements during the race is to SMILE! Have FUN! And we ask that you (Please!) take a picture during, or upon completion of, your selected distance. Don't be shy! We would LOVE to see who is running, walking or rolling with Wyatt in honor of his birthday! 

You can post your pictures on the facebook page, tag us in the pictures on Facebook or email them to me at thehouseofdestephano@gmail.com. To see pictures of who is running, walking or rolling with Wyatt would mean a great deal to our family. 

Even better, all proceeds from this event will benefit the United Mitochondrial Disease Foundation to further research and our hope for a cure. Though a cure was not to be for our son, we still imagine a life without the presence of Mitochondrial Disease for all the others still hoping -- how amazing it would be! 


So, gather your family, your friends and even your furry loved ones -- let's all do it together! You could even turn up some music and dance a few miles...I know Wyatt would be all for that. :)

We would be so honored if you could join us in celebration of our boy whose spirit was as strong as any superhero. Wyatt was determined to enjoy his life despite any labels or life limiting diagnosis listed on his medical charts.

Please help us to carry on the legacy Wyatt left behind and CELEBRATE LIFE!



Please, please, please share with your friends, your family, your co-workers, within your communities -- spread the word! We would love for this event to be a great success.


Thank you from the bottom of my heart for the continued thoughts, prayers, love and support as we learn to navigate through life without our boy. This road has been the most difficult yet and finding a way to keep going has not been easy. I will never stop grieving because I will never stop loving. But remembering him openly and celebrating his life helps us all tremendously!

I now not only live a life for me, but I live a life for him too. So, we must make it a great one -- with him, for him and because of him.
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