Thursday, October 10, 2013

He knows.

One of the last times that Wyatt woke was near the end of Mitochondrial Disease awareness week. In those minutes that I saw his beautiful eyes, I was able to tell him that his Sisters were making and selling hundreds of rainbow loom bracelets and awareness ribbons in honor of him, their Brother. Bryan had just left minutes before he woke up, so it was just he and I here in our home. I continued to tell him of the large number of people that love him and are supporting him both near and far. I also told him of the video I put together for the special week and how it was being spread via the internet.

I was able to share with my boy that he was doing it... he was "making a change", like he always said, and by sharing the story of his life he's teaching people about Mitochondrial Disease and that is part of finding a cure. He looked at me, his eyes open and focused on mine. I could see his lips and cheeks twitch as he tried to form a smile.

"I am so proud of you." I said quietly as I looked into his telling eyes.

I started another of his IV meds infusing and then laid down beside him on the now squeaky, worn, lumpy pull out bed. My hand was resting close to his when he moved his arm ever so slightly to make it so our hands were touching. I placed his hand into mine and wrapped my fingers around his as we laid together. A small smile on my face and the feeling of renewed hope in my heart as I got the chance to "see" my son again. And I was able to share with him how far and wide his story is reaching by him just being the super kid that he is.

He closed his eyes after holding my hand and once again drifted away from me to a far away place. But those few minutes that I was able to share with him the impact he was making by just being himself meant a great deal to me. There may not yet be a cure. But he now knows that he made a change, a difference, in the 11 years 2 months and 4 days that he fought to live.
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1 comment:

  1. My hand was resting close to his when he moved his arm ever so slightly to make it so our hands were touching.

    *****

    But he now knows that he made a change, a difference, in the 11 years 2 months and 4 days that he fought to live.

    *****

    Oh, Wyatt, did you ever.

    You are so missed. Here, there, and

    everywhere.

    xoxo CiM

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