Wednesday, December 19, 2012


We are home...again. Each time we arrive home from another medical stay the feeling in my heart is strong. Always grateful, no matter what has transpired, for I've been able to bring my boy home again.

He was awake all day yesterday, from 7am until late in the afternoon, waiting to go home. He happily waved and said "Bye" to the nurses as we maneuvered his chair through the halls and out to our van.

Bradycardia (low heart rate) continues to be an issue, he does have pain and his body is edematous. I'll update more at another time. Now that we're home I believe we'll see a truer picture of how the Fentanyl PCA will work for him.
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