Tuesday, August 21, 2012

We're following his (and His) lead.

Last week there was a big change made to Wyatt's pain management. It's scary to make any change in his care at this point. His body is in a fragile state and we've seen first hand that changes, no matter how big or small, can stir things up, disrupting the balance of another body system and/or unearthing a whole new issue. The palliative care team has been suspicious of possible side effects from the continuous Dilaudid infusion (PCA). We didn't necessarily feel as suspicious as they did, however they've been talking of this for some time. And after clearly expressing my concerns about this newly proposed plan combined with our boy's fragile state, I was reassured and trusted their judgement.

This new plan didn't go as smoothly as we hoped it would, to say the least. In fact, it backfired, sending Wyatt's body into crisis.

Since then, the plan has morphed into a whole new one. Wy is tolerating the newest changes and his body has been recovering from the stress and pain that the original plan caused, thankfully. (However, I'm not sure I can say the same about myself, yet.)

Either way, our boy has made it clear that he wasn't (or isn't) ready to stop fighting just yet. We're following his (and His) lead, listening to our son. This boy's spirit, his determination, love and strength is inspiring!

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1 comment:

  1. Praying for you all and Wyatt!!!