Thursday, July 12, 2012

A little update.

The days are flying by me recently. I realize I haven't updated in some time. Wyatt's hanging in there. I don't have too much to say about how he's doing, to be honest. That may sound odd, especially seeing as there is never a lack of options to discuss about our sweet boy. But he's continuing to make his own way in this journey, he never has followed the rules, medically speaking, and certainly we shouldn't expect him to do so now. He's had what we consider good days and not so good days. We never know what to expect...that emotional roller coaster has yet to slow down.

Within the last week we've increased his dilaudid, methadone and valium doses. This afternoon we will see the the doctor with hospice, she'll examine him briefly and we'll talk of pain control again. Her recommendations will go back to Wyatt's doctors, Dr. M and Dr. R. And we'll then decide what, if anything, we do or change next. Decisions at this point are difficult and have attached emotions, to say the least.

Wyatt doesn't feel well enough to get out of bed much these days, but when he does in the evenings he's enjoyed sitting in his special tomato seat as we wheel him through the house, squealing in the kitchen as I spin him as fast as I can in circles, his arms raised as if he's riding a roller coaster and then out onto the back deck. For his birthday we bought him a "pond", with his own fish. This little pond is perfect for him, as he sits in his special tomato (or occasionally wheelchair) the windows are the perfect height for him to watch the fish swimming around inside, as the girls gather around the other windows or looking from the top. He's enjoyed spending time with his fish in the evenings as the sun goes down and the temperature is more tolerable, as he likes to stick his hands in the water trying to "pet" them each and calling his favorites by name...Finny, Ninja, Sunny and Wyguy. Tuesday evening before coming inside he stuck his fingers in for one last time and several of the fish came to the top of the water, thinking there was food, and began to suck on the tips of his fingers. Wyatt laughed and decided they were giving him kisses.


 Yesterday he didn't feel up to visiting his fish friends on the deck, but was sure to ask me to check on them throughout the day and to feed them for him last night as he drifted off to sleep.
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1 comment:

  1. I love that his fish kiss him! It's so sweet to see a little boy with a tenderness for animals like Wyatt.

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