Saturday, June 9, 2012

He's fighting.

Wyatt was unresponsive for very long periods of time this week. On Tuesday evening Bryan and I transferred his limp body to the pull out couch across the room from his bed where I laid next to him, holding his hand and stroking his thick hair through the nights and some of the days this week. He had an EEG on Wednesday where the neurologist expressed his worry and concern. And later a conversation with our beloved Dr. R.

This is so, so hard.

But there are no words to convey the hope in my heart as I lay next to my sweet boy, crying as he lay limp and unresponsive for so many hours on end, to then watch as he moved his hand slightly. And after a little encouragement, to see his beautiful eyes open, focused and quietly responding, "I love you too." There are no words...

We're doing all that we can for him. I need to know we tried all that we can. I'm so thankful for a doctor who understands and is in agreement of this. We switched to Micafungin to combat the fungus, we increased his bipap setting (the ipap) after seeing the results of his blood gas, we're weaning his valium doses to try to increase his respiratory drive and in an effort to "wake him up" a little. He has woken up a little since decreasing the valium, though for short periods of time, but it's something that we view as significant. He's very sick, we all know. But he's fighting. It's all he knows, to fight, since the day he was born.

This is a very hard place to be in, it's uncomfortable and painful, but we're trying to make the choices that feel right to us.

Please know, your prayers and support are greatly appreciated. Please continue to pray for our sweet boy.
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3 comments:

  1. Praying for you, Wyatt, and your family.

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  2. Ashley,
    Thank you for your update. I understand how hard this must be-as much as an outsider can "understand". Our family wants to support yours in any way we can. We are sending you love. I think the way you have expressed yourself and Wyatt's situation is so eloquent. You make me want to love my kids better. You are an amazing mom.

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  3. Ashley and Bryan,
    Just wanted to let you know I am moving to North Carolina early august. My last days at AI will be late July. I have read your latest and want you to know I think about Wyatt often and your family. I will always have a special place in my heart for that brave boy. Wyatt and your family have been such an inspritation to me. Always think of him when the kids watch Phineas and pherb!! LOL!! Please give him big hugs from Miss Tracey and tell him I love him alot!
    Prayers and Hugs to you all!
    Tracey Gallagher

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