Sunday, May 27, 2012

Quick update- short and not so sweet.

Where do I begin...I can't seem to collect my thoughts enough to put them into words right now. But I do want to update you all. This may be quick and not the least bit refined, but bear with me.

Wyatt continues to have seizures frequently throughout the day. He's performed his seizing abilities for both Dr. R and the hospice doctor within the last couple of days. We increased his dose of valium again and have now switched to a scheduled dosing, giving it every 4 hours around the clock. In addition to significantly increasing his Keppra and adding a full mid-day dose. He's using his bipap more and his pressure settings were increased some yesterday. His lungs are wheezy and hospice has noted hearing fluid within them again this week. The cough has resurfaced a bit and his voice is hoarse and weak. We just ended the initial course of antibiotics for the pneumonia and bladder infections on Thursday, and yesterday we started a new course of another type of antibiotic. Recently he's also told us that his hands are numb and we've found he has very little sensation anymore. There's a lot going on right now, to say the least.

In the last couple days we've had some reality based discussions about our son's health and our feelings should we not be able to regain control over the seizures again, which hasn't been easy to process for me. I still have hope that we'll regain control. Though, I'm concerned he may not return to the "baseline" that he was at before they started. It seems each time his body takes a hit, such as this, we lose a little more ground. I'm worried. And very tired currently. Not so surprisingly, sleep hasn't been in abundance of late.
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1 comment:

  1. I'm so sorry to hear Wyatt struggles. I continue to keep him and your family in my prayers. I wish I had words of comfort but I do not. Thank you for sharing this update when we know you are so tired. Thinking of you!

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