Tuesday, December 13, 2011

The Reality.

As I sit here now, my home phone and cell phone both sit beside me. I'm waiting for a phone call, prepared to hear that Wyatt has another infection. In some way hoping to hear that the declines we're seeing are due to another and when treated he will return to baseline. I've been trying to convince myself that what we're witnessing is another infection in his body..."It's there.", I've been saying for a couple weeks now. But we haven't found it yet. This morning I'm questioning myself...is it there? Or am I trying to convince myself out of the fact that what we're seeing could very well be my sons body failing to a greater degree on it's own, with no infection.

We met with the docs yesterday afternoon and last night all the emotions that I've been shoving aside hit me hard.

I've been setting goals and time frames (to make it to). Convincing myself that by setting that goal we have to make it, he has to make it. But I can't deny the reality...it's not in my control.

This Holiday season when you feel like giving. Please consider helping others with Mitochondrial disease and donate to The United Mitochondrial Disease Foundation (directly or by purchasing pieces from the girls store.) It may not be in our sons lifetime, but we need a cure.
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1 comment:

  1. I've been thinking of you a lot these past few days and the sadness you are currently experiencing. I do not have much insight or advice but know that you are being thought of and prayed for. I wish we were closer so we could meet and talk face to face.....I would love to meet Wyatt. What an incredible boy you have!