Tuesday, October 11, 2011

Tuesday morning.

Wyatt had an abdominal xray yesterday morning which showed his organs even more enlarged than they had been. Which explains the huge belly and amounts of pain that he's in. The belly started to swell again after the prolonged seizure on Wednesday and even more so after the seizure Friday. With that we took a few steps in the wrong direction.

Tomorrow, Wednesday, is the last dose of "ampho-terrible." Our original goal was to run for the doors after the amphotericin was complete. We're keeping that goal in mind, though there is a LOT of work to be done on every ones part, including our boy's and his body. Even if we don't get home on that original goals date, ending the amphotericin is one step closer than we were.

Right now we're continuing to battle pain control, tweaking doses and changing plans.
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