Tuesday, September 27, 2011

Missing my boy.

I miss my boy. Currently, he's been laying nearly motionless, mostly grunting and groaning responses. His skin discolored and his body looking frail. Every so often he may shake his head yes and/or no when asked a question. Or he'll motion to the area that it hurts the most for the doctors and nurses. We've gotten about 30-60 minutes total of interaction out of him each day the past several days. But he's usually sleeping or going in and out of sleep while staring blankly at the TV. When he is awake he hurts a lot.

He's very sick and he looks very sick. It's scary. His body isn't tolerating the treatment well. He hurts a lot and seems to be still running temperatures. Though, it appears last night that always reliable autonomic dysfunction kicked in and his temps are now also swinging low.

I wish I could take it all away. I really, really do. He's not going the direction that we were expecting.
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  1. Ii don't even know what to say except you are in my prayers and I am just so very, very sorry he is going through all this pain. I just keep checking in hoping he has turned the corner......I know he will. He is such an incredible fighter!!!

  2. ((HUGS)) I hope he gets better really soon. I can't imagine.


  3. I can only imagine the heart ache your feeling right now. Please know we continue to keep you all in our thoughts and prayers. Praying for a turn around for you all soon!!