Friday, July 23, 2010

Birthday boy

We started the celebrations off early this morning.
Happy Birthday, Wyatt! 
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A special day.

8 years ago.....

26 weeks gestation. 14 weeks premature.

On July 23, 2002 our son entered this world.

One small boy who I have the honor of calling "My son".

I feel so blessed to be his Mother.
Our boy, my hero...8 years old today. 

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Wednesday, July 21, 2010

Monday, July 19, 2010

VBS fun

Last week was vacation bible school.

My kids love attending VBS at our church!
They had a wonderful time learning, creating and singing praises.

Do you want to know what Bryan and I did for the 2 hours each evening while the kids were attending VBS? 
We goofed around....talked....went out for dinner....took a relaxing walk around the lake....went shopping.

It was tough. 
But nice. 

Maggie read the first (long!) reading to start the VBS program off on Sunday morning. 

 She did a wonderful job! All of the children did a great job singing and acting out the lessons they had learned through the week.

Our three had a great time!


We had something else exciting happen at the beginning of last week. We now have a wheelchair accessible van.


This makes life much easier. Prior to this new-to-us van we were carrying around a piece of plywood in the back of our minivan. It was sized to lay inside the door and act as a ramp for Wyatt's wheelchair. Power wheelchairs are much too heavy to lift into a vehicle (250-300lbs) and a ramp or lift is needed. I was slightly embarrassed about our piece of wood for awhile, but got over it. Wyatt's independence and 'freedom' to move around as he pleases when out of the house was worth it. Our slab of wood worked decently and served us well, for this I can't complain. Wheelchair accessible vans are very costly...too costly!

Thankfully, with a bit of juggling, things fell into place....HIS plan, in HIS time.


This week holds a special day within it. This week holds a lot of memories and feelings that start to resurface.
 A day within this week is somebody's Birthday!
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Wednesday, July 7, 2010

Judged and Misunderstood

The feeling of being misunderstood bothers me. The feeling of being judged hurts.

I'm going to go out on a limb and guess that no one likes experiencing either of these situations. I know that I certainly do not.

I'm going to go farther and say that I'm sure others have felt the same sting of such misconceptions at one time or another in their lives.

This weekend we had the unpleasurable experience of feeling both of these things. Brought on by people that we thought "got it" much more than their actions and comments showed. Apparently, we were mistaken. It concerns me to see the same behavior trickle down to their own children, as well.

I think what infuriates me the most is they don't seem to realize how inconsiderate they have been to us and our child.

Over the past few years of hearing snarky snide comments and having the lingering feeling of perpetually being mocked hanging in the air, I had thought maybe we just needed to talk...let them "in" a little more. Then maybe they would understand.

However, after this weekends events it's apparent that it clearly doesn't matter. We can explain and elaborate until we're blue in the face, but it won't change a thing.

Maybe it's as simple as the old saying "walk a mile in my shoes."

I realize some of it comes down to perspective. What you lived, what you learned, what you shared along the way.

I've learned more than I could have ever imagined when I became a parent...about myself, others, my beliefs. My world changed. That world changed again after becoming a parent to a child with medical needs. I learned so much more about myself, my beliefs and others.

It's interesting to me, as I'm learning along this parenting journey, the types of people that you come across. Some are a welcomed blessing, others you learn to avoid to protect yourself and your family.
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Tuesday, July 6, 2010

Welcome to Holland

I have come across this essay a lot over the past (almost) 8 years. After coming across it again this evening I felt the need to share.


Welcome to Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandt's.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." 

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.


Emily Perl Kingsley.

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Monday, July 5, 2010

Happy Birthday, USA!

Happy Birthday, The United States of America!
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