Thursday, May 13, 2010

Getting used to the new normal...


Our week has been packed. A lot of phone calls setting up new medical supply deliveries, scheduling follow-up appointments and just getting used to the new care routine for Wyatt.

Wyatt was discharged from the hospital on a new formula, being fed continously 24 hours a day into the J-tube, new medications/med schedule and draining the G-tube as needed and while sleeping. He's unable to tolerate solid foods, beyond "clears", in his stomach. So, he's been eating popsicles here and there, and today he has been sucking on a lollipop that we decided to try for a flavor/texture variety.

One day at a time.

We had a follow-up appointment with the pediatrician today and within our discussion it was reccomended that Wyatt finish out the school year on homebound instruction. He's received homebound tutoring part time throughout the year due to the modified weekly schedule that is in place for him. So, the services are already in place and it's not that big of an adjustment for any of the parties involved. We do hope to have him pop in to his class for the end of year parties and social fun that comes with the end of a school year. I'm a bit sad that he isn't able to fully finish out his 1st grade school year with his friends, though.

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This week, in amongst the seemingly continous phone calls to medical suppliers and doctors offices, we were able to take a time-out to visit my Mother's home...where she has a litter of 5 Angora bunnies.

Oh.
My.
 
 Gosh.
 
 Cuteness abounds.

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